A research study is a study in which investigators assess human volunteers’ reactions to planned interventions, such as medical products or changes in diet, or they observe the volunteers without intervening but within a research plan or protocol, all in order to add to medical knowledge.
We welcome constituents to take part in research projects occurring in our area, helping to expand our understanding of epilepsy.
- STRIVE! Make Your Voice Heard
Opinions of Epilepsy Patients MatterSTRIVE is a survey developed by Dr. Robert Knowlton, Co-Chair of the Professional Advisory Board and Director of the UCSF Seizure Disorders Surgery Program along with researchers from other institutions, to gain epilepsy patient perspective on a future study.The STRIVE survey describes a research study for a specific type of epilepsy surgery in comparison to continued medical treatment, and then asks patients to think about whether, if they were asked to participate in a similar study, they would do so. Any patient with epilepsy is welcome to participate in the survey; we value each patient’s input!
Get Involved Here!
A prolonged seizure affects individuals of all ages, from the very young to the elderly. Status Epilepicus (SE) is a seizure lasting longer than five minutes without stopping on its own. A person whose seizure does not stop despite receiving a full dose of medicine to make it stop is considered to have Established Status Epilepticus (ESE).ESETT is a research study designed to try to save and improve the lives of people who experience established status epilepticus (ESE). Emergency department care of patients with a long-lasting seizure in the US is not the same everywhere. This study will look at three commonly used medicines given in the emergency departments for ESE: fosphenytoin (fPHT), valproic (VPA), and levetiracetam (LVT) to learn which treatment is most effective at stopping a seizure quickly.Normally, researchers get permission before a person can be included in a study. A person having a seizure will not be able to give consent. A seizure that will not stop on its own must be treated quickly; time is limited to locate and talk to the person’s legal representative about the study, so the person will be enrolled in the study without his/her legal representative’s consent. This is called “Exception from Informed Consent” (EFIC).FOR MORE INFORMATION: www.esett.org
Contact: firstname.lastname@example.org/ 415-206-4106
- Brain Health Registry
If you are 18 years or over, you can help the Brain Health Registry speed up cures for Alzheimer’s, Parkinson’s, depression, PTSD, and other brain disorders. The Brain Health Registry promotes healthy brain function through the prevention of brain diseases, brain disorders and brain injuries that affect brain function in adults. More information here.Ask your whole family to join whether or not they have epilepsy! Invite your friends! Our Brains Matter!