Support Groups

support

Group support is an important resource for anyone living with a chronic illness. Support groups are led by either trained professionals or peers with extensive personal experience coping with epilepsy and its impact on families and caregivers. These support groups provide knowledge and understanding along with an opportunity for attendees to share experiences and resources in a confidential setting.

Having epilepsy or caring for someone with epilepsy can be very challenging.  Things that are often taken for granted–driving, access to medical care, working, learning, building relationships–are compromised.  A support group gives individuals a place to talk about these issues with others who share in this experience and understand what support is needed.  It is also a place for information exchange and resource sharing. 

 

We invite you to attend any of these in-person groups
Below is a list of the upcoming support groups with details, including date and time, facilitator name and contact information.  If you do not see a group in your area, we welcome you to contact us to start the process of creating a group in your county! Search by your address or zip code to find support groups near you.


 

 

In Alphabetical Order by Location

Antioch

Families, Friends, Supporters, and Individuals with Epilepsy

Shower Of Blessings Church

2200 A Street Unit B

Antioch, CA 94509

epilepsysupport@missmeme.org

Facilitator: Ms. Phillips

415-573-4810

Arcata

Humboldt County Arcata Support Group

City of Arcata, Library Conference Room

500 7th Street

Arcata, CA 95521

gabebrody@gmail.com

Facilitator: Gabriel Brody

707-633-5704

First Tuesday

6:00 – 8:00 PM

 

Fresno

Adult Epilepsy Support Group Fresno

Third Floor – Reception Area of East Medical Plaza Building

2335 E Kashian Lane

Fresno CA 93701

Facilitator: Ken Hutchinson

559-824-2959

1st Thursday each month 5:30 pm to 7:30 pm

5:30 – 7:30 pm

 

Fresno

Pediatric Epilepsy Support Group Fresno

Third Floor – Reception Area of East Medical Plaza Building

2335 E Kashian Lane

Fresno CA 93701

Facilitator: Ken Hutchinson

559-824-2959

3rd  Thursday each month 5:30 pm to 7:30 pm

5:30 – 7:30 pm

 

Grass Valley

Nevada County Adults Living with Epilepsy & Family/Caregivers

THE UNION

464 Sutton Way

Grass Valley, CA 95945

efnca@epilepsynorcal.org

Facilitator: Barbara

510-922-8687

First Monday

6:00 – 7:00 PM

 

Mountain View

Mountain View Support Group

El Camino Hospital Group – YMCA Building, Basement Room K

2400 Grant Rd.

Mountain View, CA 94040

First Thursday of every month from 7:00pm to 9:00pm

mv_epilepsysupprtgroup@yahoo.com

Facilitator: Steve Forbes

 

Pleasanton

Eric’s Corner

Pleasanton Valley Care 2nd Floor Room #270

5725 West Los Positas

Pleasanton, CA 94588

kim@ericscorner.org

Facilitator: Kim Z.

925-734-3315

 

San Francisco

Adults with Epilepsy & Caregivers

California Pacific Medical Center , Spivey Room 106

2100 Webster Street

San Francisco, 94115

d_chiaro@sbcglobal.net

Facilitator: Diane Del Chiaro

415-751-1907

 

San Francisco

Adults with Epilepsy & Caregivers

California Pacific Medical Center , Spivey Room 106

2100 Webster Street

San Francisco, 94115

aimee.rodriguez@att.net

Facilitator: Aimee Rodriguez

415-441-1990

 

San Francisco

Living With Epilepsy Support Group

8th Floor Room A-888

400 Parnassus Avenue

San Francisco, CA 94143

rhenderson@wi.edu

 

San Francisco

Chinese Living with Epilepsy Support Group

UCSF Epilepsy Center 8th Floor Conference Room

400 Parnassus Avenue

San Francisco, CA 94143-0138

tina.shih@ucsf.edu

Facilitator: Tina Shih

415-353-9173

 

Sanger

Expressions of Courage – Fresno Youth Support Group (ages 5-17)

Room @ St. Mary’s Catholic Church

828 O Street

Sanger, CA 93657

ivanavaldovinos@yahoo.com

Facilitator:  Ivana Valdovinos

(559) 285-9140

 

Sonoma

Sonoma County Sonoma Support for Individuals with Epilepsy (SSIE)

Sonoma United Methodist Church (The Fireside Rm.)

109 Patten St.

Sonoma, CA 95476

ltlbt1963@gmail.com

Facilitator: Beth Samulewicz and Sarah Welty

707-337-5715

 

Sacramento

Sacramento Adult Support Group

Mercy Neurological Institute/Mercy General Hospital, North Auditorium

Sacramento

angie.woodward@sbcglobal.net

Facilitator: Angie Woodward

916-930-9252

 

 

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ONLINE SUPPORT
MyEpilepsyTeam is a free, password-protected social network where you can connect with others in the epilepsy community on your phone, tablet or computer. You can share tips, support, Q&A, provider referrals and more with other people who “get it”.

  • MyEpilepsyTeam is a completely independent social network.
  • MyEpilepsyTeam NEVER shares the personally identifying information of its members with anyone!
  • MyEpilepsyTeam is a monitored site that does not allow selling of any services or products.

 

For questions or more information about support groups, please contact our Assistant Director, Kelly Bertenthal, at kelly@epilepsynorcal.org or call 510-922-8687.