Teens Speak Up! is a program that provides an opportunity for teens with epilepsy and their parents to visit the nation’s capital, receive advocacy training, meet with their legislators, and tell their personal stories. Teens Speak Up! is part of the Public Policy Institute.
Teens from across the country are nominated by affiliates and selected by the Foundation to participate in the program. After receiving training at TSU, each teen is asked to turn that training into action in their respective home districts through our Year of Service program.
Our 2017 Representative
“My name is Emily and I am 15 years old. I was diagnosed with Juvenile Myoclonic Epilepsy in March of 2016. I have experienced primarily absence seizures and am taking Topamax daily. With this medication I have found that I have better control over my seizures and can complete activities, like my school work, quicker than in the past. I enjoy drawing, painting, playing the piano, and reading. A few of my favorite books include The Fault in our Stars by John Green and Walk Two Moons by Sharon Creech. I also enjoy watching movies from the 80’s and listening to music from my favorite bands such as Twenty One Pilots, along with classical music by Chopin and Debussy among other composers.”
Emily will be joined by her mother and an EFNC representative in Washington DC March 25-28.