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Project Access What is Project Access?
Project Access: Improving Care for Children with Epilepsy
is a grant
(#H98MCO8579) from the federal Maternal and Child Health Bureau, Health Resources and Services Administration, awarded to the USC University Center for Excellence in Developmental Disabilities, Childrens Hospital Los Angeles.
The grant subcontracts with UCEDDs in Alaska and Wyoming, Family TIES of Nevada, CA Children’s Regional Integrated Services System (CRISS), and the Epilepsy Foundation of Northern California.
The Epilepsy Foundation Northwest and the Epilepsy Foundation of Colorado also provide support.
Two other partners in Project Access also provide support: the National Initiative for Children’s Healthcare Quality (NICHQ) and the Epilepsy Foundation.
Please see below for helpful forms and brochures. For even more brochures click HERE!
Parent Resource Guide
This guide was developed to help parents and caregivers of children with epilepsy and/or a seizure disorder better understand their child’s condition. Professionals serving families of children with epilepsy and/or seizure disorders may also find the Guide to be a useful resource. The 48-page guide is divided into 4 sections: Understanding Epilepsy, Health Care for my Child: Access to Care/Access to Services, Advocacy and Support, Forms and Tools.
Seizure Description Tool
These documents provide graphic illustrations of common seizure behaviors. This is an excellent tool for parents to complete. This can then be provided to their child's doctor to better describe what is happening to their child during a seizure.
Guide for Caretakers
This brochure provides advice to caregivers in order to improve their ability to appropriately respond to seizures and to assist in epilepsy related challenges in the life between seizures.
This brochure was developed by the National Epilepsy Foundation.
Legal Rights of Children with Epilepsy in School and Child Care
This is a 182 page manual that provides thorough information surrounding best practices and the rights of children and youth with epilepsy who are attending school/daycare centers. This manual was drafted by an attorney at the Maryland Disability Law Center and was produced by the National Epilepsy Foundation. Sample 504 Plan
This document will be beneficial for students/families/school personnel that are drafting a 504 plan. The information provides detailed information about seizures/epilepsy and is a good reference for tailoring accommodations to individual needs. The Sample 504 Plan was created by the National Epilepsy Foundation. Seizure Observation Form
This blank document should be kept on file at schools so that if a student experiences a seizure, school personnel can provide written notes to the parent/guardian regarding what the seizure looked like. The Seizure Observation Record was created by the National Epilepsy Foundation. Seizure Action Plan
This document will aid families and schools in appropriately responding to a seizure. This document should be completed by the parent/guardian of a child with epilepsy and their physician. The Seizure Action Plan was created by the National Epilepsy Foundation. Parent Questionnaire
This document provides detailed information about the students epilepsy/seizure disorder including the medication prescribed and behaviors to look for that may indicate the student is having a seizure. To be completed by the parent/guardian of students with epilepsy. The Parent Questionnaire was created by the National Epilepsy Foundation. Parent Questionnaire-Sample
This document will aid parents in completing the Parent Questionnaire. The Sample Parent Questionnaire was created by the National Epilepsy Foundation. What Teachers Need To Know
This document provides basic but useful information about epilepsy that will assist teachers and their aides in learning basic facts about epilepsy. What Teachers Need to Know was created by the National Epilepsy Foundation. Penry Travel Assistance Fund
Travel assistance funds are available for individuals who must travel more than 50 miles from their home to receive medical services but lack adequate financial resources to meet the cost of this travel. Funding is made available through the National Epilepsy Foundation and all decisions are made by the National Epilepsy Foundation. Mothers With Epilepsy
This brochure was designed for mothers with epilepsy and provides excellent information surrounding communication strategies and best practices for caring for a child while considering safety challenges for both the mother and the child. This brochure was developed by the National Epilepsy Foundation.
Women With Epilepsy
This brochure was designed for all women with epilepsy, including mothers, and provides medically oriented information. Women with epilepsy have special considerations surrounding childbearing, breastfeeding, puberty and menopause, as well as bone density concerns. This brochure was developed by the National Epilepsy Foundation.
Epilepsy Connection
Join the Epilepsy Connection!!! Network with other parents, teens, and adults affected by epilepsy. Just fill out the form below and return it to the Epilepsy Foundation of Northern California. Your personal information will only be shared with others in the network.
Epilepsy & Day Care
This brochure provides advice to parents whose child is attending school or day care.
It briefly details the legal rights of children attending publicly funded schools and child care providers.
This brochure was developed by the National Epilepsy Foundation.
California Fact Sheet
This fact sheet was completed in October 2009 and provides healthcare and school related data.
State Forum Final Report
In 2007, stakeholders from throughout California met in Sacramento to discuss the progress and challenges facing the epilepsy community. It was the first statewide forum in ten years.
Kids Perception of Epilepsy
This 2005 publication attempts to capture children, ages 9-11, perception of epilepsy. This research was conducted in Brazil and may not accurately capture American childrens perceptions of epilepsy.
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Copyright © 2010 The Epilepsy Foundation of Northern California (EFNC) |
