Personal Stories



I developed epilepsy while in high school. I suffered from both petit mal and grand mal seizures. After undergoing several different medications, testing,

Learning how to be my own advocate


I was born with a really rare disorder called Glucose Transporter Deficiency Syndrome. I had my first seizure when I was a baby

Hi My Name is Chris.



Hi
My name is Morteza , when i was in high school , almost end of my graduation . i fell on

Morteza’s story


My epilepsy story contains two very different neurological events. I was born in 1975 with a defect in my left temporal lobe that

Will’s Story


My name is Melissa. The day before my first day of high school, I had stayed up all night for an AP English

Melissa’s Story



Dear Health Care Professional,

The care and information you provide people with epilepsy is critical. As a doctor, you are viewed as the

Russell’s Story


My name is Todd Teragawa. On November 6th, 2014 my brother Lonnie died of a grand mall seizure too young at the age

Todd’s Story


In March 2012 Aly was playing at school and fell off the Monkey Bars and hit her head and broke her arm. We

Aly’s Story



When I was 9 years old I had my first seizure. I was sleeping when my younger sister saw me starting to shake

Angelica’s Story


Who is Nikolas Ortiz? 

Nikolas Ortiz was born in October of 2003. Nikolas is a fun, loving, thoughtful, and happy boy. He has

Jodi’s Story


Our son Spencer was born in 2008 as a full term healthy bundle of joy weighing in at 9 pounds 2 ounces. Everything

Spencer’s Story



My name is Chelsea. I’m 23 years old & a full time worker at a nursing home. I was born with epilepsy &

Chelsea’s Story


My name is Meredith, I’m 27 living in SF working in retail ecommerce. I was diagnosed at the age of 5 with epilepsy,

Meredith’s Story


Hi my name is chelsea loh iam 30yrs old i started having seziures at 19 yrs old my experience me having 3 grandmal

Chelsea’s Story



All I remember is coming to a green traffic light and then, all of a sudden, the next thing I know, I don’t

Renee’s Story


I went through epilepsy from the time I was 8 until 17. After trying every type of seizure medicine, doing many tests, and

Emily’s Story


Q: Tell us a bit about yourself and your epilepsy.
A: I had my first seizure in Vietnam when I was about

Van’s Story



There is hope. I lived without it for two decades until an unforseen turn of events gave me the chance to maybe live

Shaun’s Story


My daughter Sarah was exactly 5 months old when she had her first seizure, thankfully we were in the emergency room at the

Nicole’s Story


My story is about being a survivor. At the age of two I was adopted making no information available of when or how

Kathy’s Story



Hello, my name is Samantha

i have MAE epilepsy i have had it my whole life i have been to special schools my

Samantha’s Story


I am 25 years old and didn’t realize that I have been having different types of seizures for the majority of my life.

Aaron’s Story


My daughter, Madison, began having seizures some time in December 2009, a couple of weeks before her 6th birthday. She has atypical absence

Amy’s Story



Below is a short story that I wrote several years ago about my experiences to help inspire others in challenging situations. It includes

Stacie’s Story


Taking Control of My Health:

I have had epilepsy from the age of 7. Throughout elementary, high school and even college I was

Kerry’s Story


What started out as outbursts of laughter for Emily ended up being epilepsy. I spoke to the nurse at her doctor’s office and

Michelle’s Story



I never knew much about epilepsy, still really dont. Ryan, my 18 year old son, started having seizures a couple weeks after graduating

Tami’s Story


Our ride on this wild ride called Epilepsy began on February 21st 2004 when our 5 month old son began having seizures. After

Aimee’s Story


When I was three or four years old, I remember awaking to my parents rushing my sister to the Emergency Room. Ultimately, my

Bill’s Story