Research and development of new tools to fight and better understand seizures are critical aspects of our mutual goal to create a seizure-free world. We want to help organizations get your feedback and participation to shorten the time for those tools to get to market.
DASEY CLINICAL STUDY
Seizures can be difficult to detect outside of the hospital even with careful observation by a caregiver. EEG is the best method that we have to detect seizures-but it is uncomfortable for long term use outside of the hospital. Eysz (www.eyszlab.com), a startup founded by Dr. Rachel Kuperman, a pediatric neurologist and 2019 Epilepsy Foundation Shark Tank winner, is performing the DASEY clinical study (https://clinicaltrials.gov/ct2/show/NCT04439656) at UCSF Benioff Children’s Hospital to assist people with epilepsy in counting and measuring the severity of seizures using a wearable eye-tracker. Participants in the study will have a routine EEG performed while an eye tracker that looks like eyeglasses measures eye movements.
To be eligible for enrollment:
- Ongoing typical absence seizures
- > age 4 who are able to cooperate with a routine EEG
- Referred to UCSF Benioff Children’s Hospital for routine EEG
Participants will be compensated with a $25 gift card from Amazon
Let your doctor know about your interest on participating on the study.
“Novela Neurotech is a medtech company based in Alameda, CA. We develop new solutions for the monitoring and treatment for epilepsy—not in the clinic, but from home. We’re a small but global team of dedicated neuroscientists and engineers, with decades of epilepsy research experience—and a boatload of passion—among us.
We’re currently working on an all-in-one smartwatch seizure diary. In addition to one-button seizure logging, it includes medication alerts and mood check-ins. It also sends the information securely and directly to your doctor so it’s ready to go for your next visit.
What’s more, with your consent, the data will help researchers better understand seizures, and help work towards better ways to manage epilepsy. We believe that we’re stronger, together!”
“We’re packing the seizure diary smartwatch with features, but we want to hear YOUR perspectives on what most benefits, and empowers you. If you have 5 minutes, we’d love it if you could fill out this survey (https://novelaneuro.com/seizure-diary-survery).
By making your voice heard, you’ll also be entered into a prize draw, for either a $100 Amazon Gift Card, or a $100 donation to an Epilepsy Foundation of Northern California.
Any questions? Comments? Want to say hi? Email our Shelly Fan, PhD at firstname.lastname@example.org. We can’t wait to hear your story.”
UNEEG Medical is developing a new type of medical device that will allow patients suffering from epilepsy to get accurate information about their seizures.
If you are between the age of 20-60 years and are diagnosed with epilepsy, you are eligible to participate in this study.
The interview is a personal online interview (Skype/Teams/Zoom), but a caregiver can participate if needed/relevant. All participants will receive an incentive representing a value of approximately $50.
If you are interested in participating please contact Jacob Løth Christensen from the Danish based research agency, Loufre Research at email@example.com
“Rachel Kuperman, a pediatric neurologist, spent 10 years directing the clinical epilepsy and research programs at UCSF Benioff Children’s Hospital in Oakland. During her time there she was frustrated that she did not have the seizure data she needed to provide the best care possible for her patients. In 2018, she took matters into her own hand and founded Eysz Inc, where she is leading a team in developing an eye tracker to identify seizures and side effects from medications. At Eysz, we are currently working to better understand the challenges of living with epilepsy and we would love to hear from patients, caregivers, and families about your journey. If you have 15 minutes to share with us, please reach out to firstname.lastname@example.org.”